2 Şubat 2009 Pazartesi

berrak




Hello, I am Belgin Elbirlik KAHYALI, mother of Berrak KAHYALI.
Berrak is 5 years old and a patient observed by Nutrition Metabolism and Neurology Department of Istanbul University. Her examinations are still being continued with a diagnosis as mitochondrial sickness and it hasn’t been diagnosed exactly yet. Her current diagnosis is CP (cerebral palsy) as a result of MR, EEG scanning and general consultation and the observation still is going on in Neurology Department. By recommendation of Neurology specialist, Berrak has been taken physiotherapy and rehabilitation since she was 5 months old. In spite of these diagnosis and our 5 years old struggle, she still cannot walk and even sit. When she was 5 months old, she couldn’t stand still her neck because of its nonrigidness. Her all body muscles were too nonrigid. Now she can just stand still her neck a little as a result of muscle strengthening exercises.
But in comparison with other patients, she would be better by this much physiotherapy. Her stage is still like 4 months old baby. Whereas she has got 3 hours concentrated physiotherapy in each weekday for years and she has a well disciplined program as 2 hours swimming therapy, 4 hours speaking therapy and 4 hours individual training in each week. And my steady daughter can keep in step with this program patiently. But as our doctor said; her sickness still cannot be identified, this sickness obstructs her improvement and growth. But it cannot daunt me and my ambitious daughter and we continue our struggle continuously. Of course this situation upset me very much but I have never given up. Because I know that if I say that it doesn’t work and give up, all of our struggle will be wasted. Actually she needs more effort now. I think that the time is to get result time now after that much struggle.
But there are some unknown issues that it retards us. Because of that, by recommendation of our Neurology specialist, for being freed from question marks and to get correct the real diagnosis, we think that Boston Children Hospital is our unique remedy. Our neurology specialist says that she has metabolic connatural sickness and we don’t know it, if it is found out and we go towards it, Berrak will respond to all physiotherapy works very quickly and Boston Children Hospital is unique hospital with most developed equipment to diagnose it. We decided that it is the most correct and logical step to solve our problem.
And to know it, I started to correspond with Boston Children Hospital. As first, they required all reports and MR, EEG results of Berrak. I sent them immediately. But the result of examination was not good for us, because the price of treatment was too high for us. To supply this cost is impossible for us. We keep our life standards as minimum and just can provide the cost of general treatment prices.
I wish that she will be all right and will thank you. My unique wish is to see her as speaking, walking and dancing. Her father has watched the shopwindows of bicycle shops. Maybe to buy a bicycle for his daughter will be destined to him.
All hospital and transportation costs are about 40.000$. I attached the bill reports to album titled as “fatura”. We expect your supports hopefully.

With my best regrads.

Belgin Elbirlik Kahyalı

the bank account information for your supports:

THE BANK : GARANTİ BANKASI
BRANCH NO : 277
BRANCH : SAHRAYICEDİT
ACCOUNT NO : 6674460
ACCOUNT TYPE : TL
CLIENT NO : 11010093
NAME OF ACCOUNT OWNER : BELGİN KAHYALI
IBAN:TR770006200027700006674460
THE SWIFT CODE : TGBATRIS




THE BANK : YAPI KREDİ BANKASI:
BRANCH NO : 321
BRANCH : SAİR ARSİ
ACCOUNT NO : 83654154
ACCOUNT TYPE : USD $
CLIENT NO : 06221154
CLINET NAME : BERRAK KAHYALI
IBAN NO :TR380006701000000083654154
THE SWIFT CODE : YAPITRISFEX




THE BANK : YAPI KREDİ BANKASI
BRANCH NO : 321
BRANCH : SAIR ARSI
ACCOUNT NO : 83636994
ACCOUNT TYPE : TL
CLIENT NO : 06212339
CLIENT NAME : BELGİN KAHYALI
IIBAN: TR860006701000000083636994
THE SWIFT CODE : YAPITRISFEX

NOTE : if we are going to able to go there, i will publish the invoice of hospital and all bank breakdowns here.

contact telephone : +90 538 692 54 54









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